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内容简介:
Asperger Syndrome has become an increasingly common disorder.
One in 300 individuals may have AS—exhibiting characteristics such
as average to high intelligence, obsessive behavior, intense
special interests, and difficulty dealing with everyday social
situations—and it is now more prevalent than childhood cancer and
Down’s syndrome.
As the mother of a boy diagnosed with AS in 1994, Barbara Kirby
found scant resources and support. She developed the
internationally renowned OASIS (Online Asperger Syndrome
Information and Support) Web site in 1995 to help other parents
find the information they need. She teamed up with Patricia
Romanowski Bashe, now co-owner of OASIS and herself the mother of a
son with AS, to write The OASIS Guide to Asperger Syndrome,
which has become the standout authority in the field and a
must-have for this growing audience.
Now Bashe and Kirby have crafted a fully revised edition of this
comprehensive resource for parents, teachers, therapists, and
anyone who knows or works with someone with AS. In addition to
discussing what AS looks like and how parents can guide their
unique child through the social, emotional, and intellectual
challenges of growing up, this edition includes new developments
made in AS research over the past four years, new thinking on
diagnosis and evaluation, the latest approaches to medication and
social skills development, and tips on navigating the maze of
interventions, therapies, and special education. The authors know
firsthand the joys and frustrations of raising children with AS,
and they share their own experiences as well as those of dozens of
parents facing the same issues.
Filled with practical information and emotional support, this is
the most complete and authoritative guide available. Whether your
child has been diagnosed or troubling symptoms are just becoming
apparent, this book will point you in the right direction as you
face the particular challenges of loving and raising a child with
Asperger Syndrome.
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作者介绍:
Patricia Romanowski Bashe, M.S. Ed., co-owner of OASIS, has
worked as an author and editor for more than twenty years. She has
cowritten more than twenty-three books, including four national
bestsellers. She is a certified special education teacher and
executive director of the David Center, a Long Island–based
not-for-profit organization dedicated to serving children and
families facing autism spectrum disorders. She lives on Long
Island, New York.
Barbara L. Kirby is the founder and moderator of OASIS, the
award-winning online source for AS information and support. She
moderates several online support forums and was a founding member
of ASC-US, Inc. (Asperger Syndrome Coalition of the United States)
and serves on its advisory board. She is also on the board of Homes
for Independence, an organization that helps adults with autism
spectrum disorders achieve home ownership. She lives in Delaware.
Both Bashe and Kirby are parents of children with Asperger
Syndrome.
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“A godsend to the increasing number of families who have a child
recently diagnosed with Asperger Syndrome (AS). They will get
sympathetic and sound practical advice for the difficulties they
are facing, whether it is in coming to terms with the diagnosis or
in choosing the right kind of education and therapy. Two heroic
mothers, Kirby and Bashe, have made it their business to find out
what AS is really like and what it entails in practice. They show
by example that it is possible to meet the challenges of a child
with unusual skills as well as problems. Above all, they show the
way in which AS can enrich our lives.” —Uta Frith, professor of
cognitive development, University of London, and deputy director of
the UCL Institute of Cognitive Neuroscience, and author of
Autism and Asperger Syndrome
“Well beyond merely identifying and defining AS, the authors
provide dozens of field-tested strategies that can be used at home,
in the classroom, and in the community. . . . Bashe and Kirby offer
reliable counsel on topics related to diagnosis, treatment,
assessment, and placement. If you share your home or classroom with
a child with Asperger Syndrome, buy this book.” —Richard D. Lavoie,
visiting professor, Simmons College, and executive producer of
How Difficult Can This Be? The F.A.T. City Workshop
“The OASIS Web site has been a light of hope for individuals with
Asperger Syndrome, their families, and advocates. Kirby pioneered
ways of transforming the Internet into an accessible tool to help
those who needed reputable information and practical guidelines on
social disabilities. Her groundbreaking ways continue in this
collaboration with Bashe, now in its second edition. . . . Inspired
and informed by their professional background and by their uniquely
intimate perspective on parenting children with AS, the two
compiled a treasure of essential solutions to anyone who, like
them, experiences the joys and challenges of nurturing the talents
and addressing the needs of these very special individuals.” —Ami
Klin, Ph.D., Harris Associate Professor of Child Psychology and
Psychiatry, Yale Child Study Center
“The complexities and treatment needs of the person with Asperger
Syndrome(AS) are described far better in this comprehensive book
than any other book on the subject. Virtually any topic that
relates to helping the child with AS is discussed. . . . The reader
can explore the emotional impact of this diagnosis on the family
while also gaining insight into specific treatment strategies that
can be used both by professionals and parents. This is an excellent
and uplifting must-read for all parents and professionals trying to
come to terms with their child or student who is ‘bright but
clueless.’” —Michelle Garcia Winner, M.A., S.L.P.-C.C.C., director,
the Center for Social Thinking
“Just when I decided that The OASIS Guide was the ultimate
‘go to’ book for AS, the authors made it even better! The
completely revised and updated OASIS Guide yields another
nugget of wisdom every time I pick it up. Whether the reader is new
to AS, needing ideas about an emerging problem, or facing the next
developmental stage, The OASIS Guide offers readable,
practical advice. I’ll recommend it enthusiastically and often.”
—Teresa Bolick, Ph.D., author of Asperger Syndrome and
Adolescence: Helping Preteens and Teens Get Ready for the Real
World and Asperger Syndrome and Young Children: Building
Skills for the Real World
“To improve on the remarkable is an achievement few
accomplish. With the revised edition of The OASIS Guide to
Asperger Syndrome, Patricia Romanowski Bashe and Barbara Kirby
have created an even more essential resource for parents and
professionals. At once comprehensive and easy-to navigate, the
revised OASIS Guide will offer parents, teachers, and other
professionals a wealth of information in a compassionate voice by
parents who have been there. Every parent of a child with Asperger
Syndrome, and every teacher working with these students, should own
this book.” —Michael D. Powers, Psy.D., Center for Children with
Special Needs, Yale Child Study Center, and author of Asperger
Syndrome and Your Child: A Parent’s Guide
“A wonderful book—this volume will be an invaluable guide
for parents and teachers.” —Fred R. Volkmar, M.D., professor of
child psychiatry, psychology, and pediatrics, Yale Child Study
Center
“The OASIS Guide is a welcome addition to the growing body
of literature on AS. This easy-to-read resource will provide
readers with much-needed information on a broad array of topics.”
—Diane Adreon, associate director, University of Miami Center for
Autism and Related Disabilities
“OASIS has long been a tremendous resource for family members and
professionals. The authors have thoughtfully organized a massive
amount of critical information into a comprehensive and valuable
guide. Every family and professional should have a copy of this
book.” —Dr. Cathy Pratt, board of directors, Autism Society of
America
“Barbara L. Kirby and Patricia Romanowski Bashe have provided the
community of Asperger Syndrome with more than a rainbow’s end of
gold. They’ve opened a treasure chest brimming with understanding
and support.” —Liane Holliday Willey, Ed.D., author of
Pretending to Be Normal: Living with Asperger’s Syndrome and
Asperger Syndrome in the Family: Redefining Normal
“If someone were to ask me to suggest the most useful
resource about AS, I would not hesitate for an instant: The
OASIS Guide to Asperger Syndrome. This is a must-read book for
parents, educators, and individuals with AS alike.” —Brenda Smith
Myles, Ph.D., author of Asperger Syndrome and Difficult Moments:
Practical Solutions for Tantrums, Rage, and Meltdowns
“This inspiring book offers sound advice, comforting
support, and remarkable insights with clarity of purpose, profound
honesty, and depth of meaning. It’s destined to become a classic in
its genre.” —Diane Twachtman-Cullen, Ph.D., executive director,
Autism and Developmental Disabilities Consultation Center
“Rarely does one find such a wealth of quality information all
between the same two covers. This book has important work to do,
and it is more than up to the task.” —Carol Gray, director, Gray
Center for Social Learning and Understanding
“Incredible! The OASIS Guide to Asperger Syndrome contains
tremendous advice, tips, and practical solutions to manage the
confusion of special ed and Asperger Syndrome. The new parent and
seasoned veteran should read the guide cover to cover. It is
excellent.” —Peter W. D. Wright, Esq., coauthor of Wrightslaw:
Special Education Law and owner of wrightslaw.com
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